Eczema Groups Abroad

Eczema Voice: People and Support Groups: Eczema Groups Abroad


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Top of pagePrevious messageNext messageBottom of pageLink to this message   By Tere on Sunday, August 12, 2012 - 10:52 pm:

We definitely need more smart people like you aorund.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Felipe on Sunday, July 15, 2012 - 08:55 am:

it's a 50/50 chance of hiavng it for life, but she won't always suffer. Actually most children who have it don't end up hiavng to deal with it in adulthood. I didn't. Sometimes there are breakouts. Just be careful out in the sun and everything. Dry skin and certain weather conditions make it worse.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Roby on Tuesday, June 05, 2012 - 02:08 am:

My Niece is 7 and she has eczema real bad where it gets to be red all over and it bdeels, she is continuously itching and scratching. She has to see specialist all the time. She also has so much cream that my sister puts on that its an all day thing. She even takes her creams to school. In the summer it is worse because of the heat, winter isn't that bad its more cooler. She has seen allergist to help with the itching, because some foods can make her itch more. She has tried every cream there is out there for eczema and it doesn't seem to help. We all feel real sad for her cause she is always wearing long pants and long sleeve shirts so she doesn't scratch her skin. She even wears socks on her hands so she can't scratch. From what my brother in law says, it just happens to some kids, it is hereditary. But neither one have it. She also has 2 other kids and neither one has it. So she got it from someone in the family. But no one knows. I wish you luck and hope it doesn't get that bad. Best of luck to your daughter

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Gustavo on Sunday, April 22, 2012 - 05:48 pm:

My daughter is also 4 otnmhs old and suffer from the same problem since birth.She was born with what is called a newborn rash.I have been through all the formulas and the doctor put her on Nutramigen and at first she didn't like the taste and kept spitting put after awhile she got the taste for it and has been on it ever since.Alimentum is the same as Nutramigen just different makers..

Top of pagePrevious messageNext messageBottom of pageLink to this message   By mlangsch on Thursday, March 10, 2011 - 11:28 pm:

Hi all. I need 100 people that suffer from eczema for a survey. I don't need address, phone numbers, income, SSN and other personal info.
The questions cover your life with eczema, treatments and maybe a trial of a natural product from Hawaii. Will reward your efforts.

Please email me at mdl@oilsofaloha.com for more questions or if you want to participate.

Thank you,
Maria

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Lisa on Saturday, November 14, 2009 - 10:33 am:

hi i am 20 years old and have been suffering with eczema for many years. i know there is no cure but i need to control it so i can live like a normal human being. im totally desperate and frustrated with life. have been suffering with daily itching and pain. eczema is mainly behind my knees, elbows, neck, face and fingers. allergic to most inhalants. bathing makes it worse. tried most doctors - homeopath gave me some relief but ive hit a brick wall now. i need help and i need to speak with fellow sufferers. is there a support group in south africa?

Top of pagePrevious messageNext messageBottom of pageLink to this message   By sab13 on Thursday, August 16, 2007 - 05:29 pm:

does anyone agree that for some people pure orange juice can flare your skin up,

pls can ppl respond and write their suggestions
thnk u

Top of pagePrevious messageNext messageBottom of pageLink to this message   By marzic on Thursday, July 26, 2007 - 10:07 am:

Jo... I just came across this site, 7 years too late! Hope the Melbourne Group is still up and running...

Top of pagePrevious messageNext messageBottom of pageLink to this message   By smithers on Monday, November 13, 2006 - 05:47 pm:

I am a 74 year old gent suffering from psoriasis on a large percent of my body in very different areas have been talking wih someone aboutnemtrex has anyone tried it just a lot of money up front if it doesnt work please let us know than k you Lindsay Ontario Canada

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Kate on Wednesday, June 28, 2006 - 11:22 pm:

I was checking this list as I have recently developed Psoriasis, little patches. But I notice most messages are regarding Eczema. For what its
worth I purchased Essence of Time Night Face Cream and it had lindal peat moss in it from the ancient bogs in England. Marvellous stuff, healed
heat rashes overnight as well as good for the face. My niece has suffered from eczema for some time on her arms and I gave her a jar low and behold it got rid of it. Product's reasonably
priced and I had no trouble having it shipped here to Canada from the US. Of course the company makes no claims as to the healing qualities I order 6 at a time just to slather on
any sun burn or skin problems.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Brenda on Friday, June 23, 2006 - 01:09 pm:

I am 43 yrs and have suffered with exzema all my life, although not as bad now as when iwas younger. after getting through the very tough years of coping with exzema, I am now left with very thin skin on my hands legs and feet through constant use of steroid creams. I feel very self concious and embarassed about the appearance of my skin and a am always hiding my hands and keep my legs covered up. I was wondering if anyone around my age is going through the same thing.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Ashley on Thursday, June 01, 2006 - 07:28 am:

I am also interested in an Excema Support Group in Canada. If anyone can tell me where to find one in British Columbia, let me know. I've been suffering with severe excema mainly on my face and upper body. If anyone is interested e-mail me at rainbow_257@hotmail.com. I have been dealing with this for 2 years and I am 20 years old.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Benjamin on Wednesday, February 22, 2006 - 09:29 pm:

Anyone heard or tried Nemtrex, a medicated foam treatment that puts eczema in remission. check out www.nemtrex.com. they are asking me to try it out but i want to hear from others before i purchase one more thing that doesn't work. Any info would be most appreciated. Thanks

Top of pagePrevious messageNext messageBottom of pageLink to this message   By kevin on Saturday, May 21, 2005 - 06:24 am:

looking for support groups in Portland, Oregon area. My daughter has bad eczema and just turned 4 years old. She's on medication and is just starting allergy shots.

My wife and I are at our wits end with this. Need a support group.

Thanks

Top of pagePrevious messageNext messageBottom of pageLink to this message   By shyam on Friday, February 11, 2005 - 06:49 am:

Hello everyone, has anybody found relief for Atopic Dermatitis (AD)by visiting a Dead Sea clinic in Israel. If yes, please provide the name of the clinic, duration of stay and total cost of treatment and accomodation. I want to take my five year old son who suffers from chronic (AD).
Thanks.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Sarah on Monday, August 09, 2004 - 09:16 pm:

Hello I have a ten month old son who has had eczema since he was 2 months old. I am looking for other people to talk with. I have found it very difficult to deal with. He is slowly looking better. I am trying to go back into the work force but because he is breast feed he gets upset and breaks out. He will not take a bottle or cup. hope that someone could help Is there any support groups in Canada? Thanks

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Jackie on Thursday, March 04, 2004 - 10:13 am:

Canadian People - The Eczema Society of Canada

http://www.eczemahelp.ca/internal.htm

They have some good articles under News and Articles.

WE NEED MORE SUPPORT GROUPS IN CANADA!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Jackie on Thursday, March 04, 2004 - 10:06 am:

Audreana, I went to the Patient Conference in Portland, Oregon in 2001. I really wish that more eczema sufferers would attend these events. There were not that many people there who had eczema. :( The information was great that we received.

NEASE (National Eczema Association for Science and Education) There website is http://www.nationaleczema.org/

The conference to my standards was pretty good and it was so comforting meeting two girls my age who had the condition.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By USA on Wednesday, February 18, 2004 - 05:14 pm:

Audreana,

HI! I am based in the States Please visit the National Eczema Association website. They are having the very first Conference in July 2004 and we are going!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Grace on Wednesday, December 24, 2003 - 11:22 pm:

Hi
I am from south africa. Need lots of info regarding eczema. Would love to join/start a support group. I need to relieve my family from my end;les skin stories!
Please contact me via my boyfriends email:
hob_goblin_2@hotmail.com
Love to u all
Grace (coined to remind me i should bear all with grace)

Top of pagePrevious messageNext messageBottom of pageLink to this message   By s on Tuesday, December 09, 2003 - 03:48 pm:

call my dad name anand he knows the medicine no for india 00917552620042

Top of pagePrevious messageNext messageBottom of pageLink to this message   By kez.w on Monday, December 08, 2003 - 11:29 pm:

Hi found your message on the eczema site.
Ihave a son of3 and half with bad eczema,
Isee you have a baby,this made remember how things were for us.
I,m sure you must find the heat aggrevating the eczema? Ican only reasure you that you will get through this.
Aaron is much better than when he was a baby, we had to bandage him day and nt,He does wear mitts during the day especially when hes tired or itching,but you have to keep going . good luck

Top of pagePrevious messageNext messageBottom of pageLink to this message   By maureen on Thursday, July 24, 2003 - 06:24 pm:

can anyone advise me, my daughter who has quite severe eczema and controls it with immunosuppressant drugs has been offered the chance to study in the usa for nine months under a government funded scheme
However the insurance will not cover the cost of her seeing a dermatologist and getting the necessary blood tests and as she will need at least three appointments during her stay the costs are prohibitive
Does anyone know what disabled students in this sort of position can do to help fund these costs?

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Michelle on Friday, July 04, 2003 - 08:13 am:

Thank god !!! I have finally found an eczema site that looks relevant and recent. It is great to see that sufferers have a voice on line. Keep up the great work. I'll be back !!!!!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Bridget on Tuesday, July 01, 2003 - 02:05 pm:

Hello, i'm 20 years old and from the UK.As part of my university course i'm going to teach english in Valencia, Spain for 10 months in september.My skin problems are generally described as eczema but also as 'polymorphine skin disorder' by a dermotologist-a reaction to extreme sunlight or heat (including changes in temperatures).At the moment my skin is only bad on my hands, but during summer and hot weather it can develop on my face, arms and legs.

Any suggestions/advice of how to control it while abroad???
I know its likely to get worse and i accept this, so will be taking lots of creams have been used in case i need them.My local GP said the Health service in Spain is very good anyway, which is good to know of i need help then.

Bridget.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By briannah1 on Saturday, May 24, 2003 - 08:32 pm:

Looking for somone to chat about eczmea my son has had it for 2 years and my daughter had it only for 1 year.... email me at briannah1@aol.com

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Mum on Wednesday, February 26, 2003 - 08:48 pm:

Hi,I'm a British living in Leipzig,Germany.Does anyone know of any English speaking support
groups here ?! I have a 7 month old daughter who has eczema on her hands and cheeks,and now a few small patches on her legs.Has anyone tried Eucerin Eurea 5% cream or Elidel on a baby? What are the results?

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Jollygreen on Sunday, November 17, 2002 - 07:44 pm:

I live in the Eastern Cape area of South Africa and would like to know if there are any groups/sufferers in this neck of the woods?

Top of pagePrevious messageNext messageBottom of pageLink to this message   By lisa s on Wednesday, November 06, 2002 - 07:44 pm:

Hi! I have a 12-year-old, hockey-playing son with severe eczema (Virtually all over his legs, arms, and body, constant flareups). His main problems are itching and pain, but I think the embarrassment of the massive sores and scabs are bothering him, too. At school, at home, with friends, he is constantly scratching (even with cortosone creams, antihistimines, preventative measures, etc.). We live in dry, cold Colorado Rocky Mtns, and he has been under the care of an Allergist since toddlerhood, and now sees a Dermotologist as well.
I have felt so helpless--in the middle of the night I heard him crying and went up stairs to find the pitiful sight of him weeping while re-applying creams and wrapping more Saran Wrap on himself. He said he was in pain. Is there any evidence/research that indicates that eczema can flare up during hormonal spikes, as in adolescence? Any suggestions? Any support groups in our area? Thanks, lisa

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Jackie on Monday, September 23, 2002 - 01:12 am:

I live in Canada and I currently know of no support groups in Canada, but Bernice Krafchik of the Sick Kids Hospital in Toronto may be able to tell you if there are any.

Also try 416-813-7872
Michelle Carroll, Executive Director
Canadian Eczema Society for Education and Research

(This may be Dr.Krafchik's support group)

USA has the NEASE (National Eczema Association for Science and Education). They have a great newsletter called The Advocate in which the support groups are listed on the back.

I give Kudos to the UK for having so much support for the cause and such an amazing newsletter The Exchange. Thank you, National Eczema Society. I applaud you for your work.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By muggins on Thursday, September 05, 2002 - 11:41 pm:

Hi: anyone know of an Irish eczema website??

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Naminder on Tuesday, June 25, 2002 - 11:53 am:

Hi Audreana,
this board is for everyone, we won't boot you out just because you're American!! It isn't an Aussie site, we are actually from the UK. Feel free to ask what you like, I'm sure someone will be able to help you.
A good place to start is the Babies section, under People, especiaily 'Sometimes it's never ending'. Lots of advice there.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Peachy on Tuesday, June 25, 2002 - 09:20 am:

Hi Audreana, Don't think it's just as Ozzie site as I'm sitting here in Dorset, UK having a great time plugging in and chatting to you lot. Welcome on board.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By audreana on Tuesday, June 25, 2002 - 02:55 am:

Hi! I'm interested in online (or other) eczema support groups in the states (U.S.). Does anyone know how I can find such a support group? I've done a web search, but don't seem to come up with anything?! This group is GREAT! Do eczema sufferers/those who care for them, from the U.S. belong to this site? Is it strictly an "Aussie" site? I don't mind being "different," but if it's against the rules... I don't want to get in trouble!? I just need advice- DESPERATELY!!!- for my son, who suffers from severe atopic dermatitis/eczema. If someone can help me out, here, I'd be greatly appreciative! Thanks!!!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Jan on Wednesday, April 10, 2002 - 10:17 pm:

Help my son is going to Canada and I cannot find any information on no perfume/non bio washing powder there. Does anyone know anything about exzema groups in Canada? please reply to Jan.tudball@btinternet.com Thanks

Top of pagePrevious messageNext messageBottom of pageLink to this message   By eczemavoice on Saturday, October 27, 2001 - 02:10 pm:

reminder for anyone in Melbourne Australia to plesase get in touch with Jo - see below

Top of pagePrevious messageNext messageBottom of pageLink to this message   By eczemavoice on Sunday, October 21, 2001 - 08:26 pm:

hi Jo - no problem. I will also forward details of this to other Aussies that we have been in touch with. They may be able to help as well

good luck - and well done

Top of pagePrevious messageNext messageBottom of pageLink to this message   By jo on Sunday, October 21, 2001 - 08:25 pm:

Hi Davinder,

I was wondering if it is possible to get you to ask for any people living in
Australia in the Melbourne area to email me at eczemapeople@hotmail.com. I
am determined to give this support group thing a try. I also think it is
very important to meet these people in person. I know for myself that I do
avoid public situations when I am having a flare-up, so I think it may help
to just let ourselves be seen amongst ourselves. Look fear in the face! If
eczemavoice could help with this I would really appreciate it!

Cheers

Jo

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Angie on Thursday, August 02, 2001 - 10:29 am:

Hi there, I'm from Adelaide South Australia and my 6mth old son has severe eczema. I am desperate to speak with local people in similar situations and wanting to start up a support group. Please contact if you're interested, would love to be in touch with others. Thanks and regards

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Davinder on Thursday, July 12, 2001 - 08:25 pm:

I am sure most of you are aware that we are from the UK.
However a growing number of visitors to this site are not. So, if anyone not from the UK wants to publicize their support groups let us know and we will try to help bring people together.


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