Gt Ormond St Allergy Dept Closure - PETITION

Eczema Voice: People and Support Groups: Gt Ormond St Allergy Dept Closure - PETITION
Top of pagePrevious messageNext messageBottom of pageLink to this message   By Stuart on Sunday, July 15, 2012 - 03:24 pm:

About $ 18 a vial (they are multiple use) is what I pay.EDIT: I think that some poelpe here are confusing immunotherapy with a one-time Prednisone shot. I am assuming that you are asking about immunotherapy-the long term series of shots that will help create an immunity to the allergens? THESE shots are safe long-term. Frequent dosing with steroids like Prednisone is not. My answer is for the $ 18 I pay for a vial of immunotherapy shots for my English Setter.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Brisa on Tuesday, June 05, 2012 - 01:23 am:

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Top of pagePrevious messageNext messageBottom of pageLink to this message   By Adriana on Sunday, April 22, 2012 - 04:36 pm:

I can't claim to be an expert on Cholesterol but I can make you 20 years ougyer within a month or so and that in itself will improve your energy and concentration which will in turn get you up and out and doing things that you never thought possible. Your tubes will clear and you will become a new person and Cholesterol problems will be a thing of the past. Reply

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Jimbob on Thursday, January 17, 2008 - 07:42 am:

Please don't spam the boards.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Jimbob on Wednesday, July 11, 2007 - 04:45 pm:

I can't really help with your question but I do know that my son was prescribed high doses of vallergan forte due to not being able to sleep due to his eczema. James is now 2.5 and not had this for a few months now as we seem to have is eczema under better control. This medication is not usually prescribed to a child until they are 4 and then it is in much smaller doses than my son had. It is difficult when in that kind of position because you do worry it it has any long term side effects.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By long_time_eczematic on Tuesday, February 06, 2007 - 08:55 pm:

Can anyone help me? I was a regular visitor to the great ormond street eczema clinic during the 1970's and was prescribed adult doses of Mogadon, Valium, and Phrenegen. I would be very interested to know if anyone else was prescribed these drugs as a young child.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By helen on Saturday, December 23, 2006 - 05:06 am:

not sure how much my view is now but how&why? wot in it`s place is going to take over,is it sumwhere new for the pen pushers to sit or just maybe becoz they`re demanding a few extra thousand per yr?wotever the reason,it`s not good enuf & it`s disgusting,this is Great Ormonde St ppl r talking about not some seedy lil outback room,honestly there`s far too many greedy ppl in the world today,& it`s not getting any better or easier for every1 else!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By eczemner on Friday, September 15, 2006 - 12:19 pm:

what a pity to know that dermatology department in GT ORMOND ST has been closed.. cuz i was looking for it for along time..spcially after i saw a film of the successful experiment for curing eczema with cooperation with chineese scientist.!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Caroline on Monday, October 24, 2005 - 07:51 pm:

I was a patient in this department back in the early/mid 80s... such a shame it's closing!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Anonymous on Sunday, November 04, 2001 - 08:36 pm:

Allergies are on the increase in Britain and we need all the resources we can get to combat them. How come this vital centre has closed down? Please please re think the decision.....look at how many people the department has helped and imagine the heartache of those now waiting on long, long lists for treatment. For heavens sake re consider.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By pj on Monday, August 27, 2001 - 11:31 pm:

Following RAST testing we have established a wide range of staple foods to which our 15 month old son is severely allergic i.e. wheat, dairy, chicken, eggs. We have been advised not to cut these foods out of his diet until we see an allergy specialist and are on a waiting list. The anxiety we face as parents coping with a very allergic little boy and not knowing when we will receive the help we need is dreadful. This country needs more specialist clinics not less. When will the Government give some priority to our children? As a family we suffer 24 hours a day, 7 days a week trying to control this debilitating condition, I cannot emphasise how far it affects every area of our lives, yet perhaps it is not glamorous or media-worthy enough for the politicians to get involved. I shall be writing to Alan Milburn to voice my disgust at the closure and general contempt of the Governments failure to give any priority at all to serious skin conditions.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By eczemavoice on Thursday, August 23, 2001 - 11:49 pm:

Great disappointment. We need more allergy clinics not less, in particular with regards to children's allergy clinics. The Foundation has registered its profoundest regret and asked for them to re-think their decision as there are a lack of paediatric allergy clinics in the UK with most having long waiting lists. The Great Ormond Street Hospital paediatric allergy clinic is highly respected and provides an excellent and much needed service. We are working closely with the BSACI on a National Strategy for allergy services which hopefully will stop this happening in the future.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By eczemavoice for Jill on Saturday, August 18, 2001 - 01:56 pm:

copy of jill's letter

The Upminster Eczema Support Group
Jill Mead


Mr Alan Milburn M.P, House of Commons, London SWIA OAA.


Re: Closure of Allergy Dept. in Great Ormond Street Hospital

Dear Sir,
I run a Support Group in Upminster for parents of children who suffer from eczema. The majority of the children also have food allergies as well as eczema.

I usually recommend that their parents contact the British Allergy Foundation or the Anaphylaxis Campaign, but other than offering valuable support and information, they are unable to offer medical advice and usually suggest that their child should be seen by an Allergy Specialist.

If I can use our situation as a prime example; our three year old son suffers from multiple food allergies ranging from apples to peanuts. We regularly avoid giving him a wide variety of foods, just in case. Every meal time is potentially life threatening as is going to playschool, holiday, parties and visiting friends or relations, in fact anywhere where there is food. We worry that we are restricting his diet unnecessarily by avoiding so many foods, just in cas. He needs extensive allergy testing and for the results to be challenged regularly - every three years. Living with an allergic child restricts life for all the family.

Local hospitals are limited in the range of allergens they can test for and in any case once parents are armed with a set of results they are not advised how to deal with them, only that they need to see a specialist.

Allergy is on the increase in Britain, hense intense food labelling for one, so why then has a much needed department been closed? I can appreciate that there are many other important departments that need funding, but to dismiss allergy as non-life threatening, seems ludicrous.

Please could you explain it.

I have enclosed a petition with this letter - a copy of which has been sent to the Chief Executive of Great Ormond Street Hospital.

Yours Faithfully
Mrs JiIl Mead

Top of pagePrevious messageNext messageBottom of pageLink to this message   By eczemavoice on Friday, August 10, 2001 - 11:15 pm:

This is the associated press release - unedited

Food Allergy Clinic
Statement: 13 July 2001


Great Ormond Street Hospital for Children NHS Trust regrets the closure of the Food Allergy outpatient Clinic.

The Allergy Clinic had developed as an offshoot of the large and complex Immunology service at GOS over recent years. With the growing general interest in allergies and a greater demand for their management, a critical point was reached at GOS when either major investment was needed in this outpatient service or alternative arrangements needed to be made. Unfortunately, this service was not seen as a priority use for the available funding and so a decision was made by the Trust to discontinue this clinic. We must stress that this clinic was mainly dedicated to 'food' allergies, and other allergic disorders treated in GOS for many years would continue as previously.

Part of the reason for this decision was that there is already another centre in London (notably St. Mary's Hospital - 4 miles away) with a substantial paediatric allergy services with dedicated facilities, staffing, support services and research programmes. GOS, while providing treatment for allergies where identified as part of the overall child's care plan, does not have such specific facilities and is unlikely to 'grow' them in the near future unless there is a substantial investment into secondary paediatrics. Until that time, the priority for any additional funding at GOS is likely to be for the specialised tertiary services that very few other hospitals can provide, and allergy is not currently thought to be amongst these.

Letters have been sent to the families of patients attending the Allergy Clinic to explain the reason behind this closure, and also direct them towards other hospitals where they could obtain the services they require.

Eczemavoice - our understanding is that there is an 18 month waiting list for St Mary's. Perhaps this shows a lack of a national srategic approach to allergy testing. We hope to get a NES view next week with further details. If nothing else then having a debate on this will continue to raise awreness. Please note this is not meant to be a political statement of any sort!!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Liz Such on Friday, August 10, 2001 - 01:30 pm:

As someone who has lived with atopic eczema all my life, allergies are an everyday experience. Testing for allergies is a vital component of understanding a seemingly inexplicable disease. Knowing my allergies allows me to manage my environment and daily skin care routine so that eczema has a minimal affect in my everyday life. Specialists, consultants and support staff are key in the process of educating people like me about allergies and without them I would have suffered considerably. As such, I oppose the closure of the allergy department at Great Ormond Street.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By eczemavoice on Thursday, August 09, 2001 - 10:24 pm:

The allergy department at Gt Ormond St has just been closed down. We appreciate that there must be real debate on the issue of NHS and limited resources. However we have to make our voices heard within this debate. A petition is being organised which we would like to support. That is why we have set-up this topic. We will provide more details as we get them following our enquries. Meanwhile if you would like to support the petition then please do so by posting an approriate message under this topic. We hope to present a national petition to Alan Milburn in October. We do appreciate that not every one may agree so - in true democratic style - you can put forward contrary views.


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