Doctors

Eczema Voice: People and Support Groups: Doctors


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Top of pagePrevious messageNext messageBottom of pageLink to this message   By Archie on Sunday, July 15, 2012 - 09:58 am:

she hates to get her eyebrows waxed cause she alwyas feels so uncomfortable having a stranger s more by Hillary HTestimonial #15 Best Ever: Oh, Amanda! I just love the time that we get to spend together. I wouldn't change a thing! Janet by Janet KTestimonial #16 Best Ever: Nothing different. You are the BEST!! Can see such an inprovement all ready with my acne. Thank you so very much. by Jennifer ATestimonial #17 LOVED My treatment! by Jennifer K.Testimonial #18 Best Ever: Everything is alwyas perfect! Thank you for helping me so much! I can't wait until the next time! by Jillian PTestimonial #19 It was great meeting you today! You are a rockstar! Love your pink room it suits you well. My experience was fantastic and I will be back! by Jobey B.Testimonial #20 I really enjoyed my appointment, I felt comfortable and energized by it. And I was a tough customer because I'm apprehensive about how sensitive my skin can be. I appreciated all the great advice, too. I was in good hand more by Jodie STestimonial #21 Loved It by Joshua MTestimonial #22 Best Ever: You are fabulous! Always fun, fast and pain free!!! LOL. Seriously I wouldn't go anywhere else. I LOVE YOU!!!! Joy by Joy STestimonial #23 My experiences have been great every single time. The atmosphere is soothing, warm and welcoming. You alwyas put me at ease and no matter what I'm having done, I feel completely comfortable. Love love love coming to you. by Koa JTestimonial #24 Best Ever by Kristen CTestimonial #25 Loved It by Laness LTestimonial #26 You were absolutely amazing!!! I am the biggest puss puss when I get my puss waxed and Amanda was phenominal!!! No pain and no pesky hairs left over! Love it and have already recommended to everyone! Thanks miss thang! by Lea A.Testimonial #27 Best Ever: Seriously, I love you and your shop, Amanda. You do an awesome job! by Lindsey H.Testimonial #28 You are a true professional! Your kindness, humor, and easy going nature are much appreciated. Your space is fun and clean- VERY IMPORTANT! As crazy as it may sound- I actually look forward to our appts! by Lisa H.Testimonial #29 Loved It: I would never go anywhere else. I've been following Amanda for years and will continue to do so. Not only is she great at her craft, but she makes you laugh the whole way through! I love Amanda! by Lora STestimonial #30 Best Ever: My experience was absolutely fabulous! I totally enjoyed my facial! by Maria ZTestimonial #31 Loved It: Don't change a thing! You are great but sometimes your reservation system fails you See you again soon! by Melissa FTestimonial #32 relaxing and I felt very confident that Amanda knew what she was doing and I was in good hands! I'm looking forward to more waxing (never thought I'd say that) HAHHA and other services. The more by Michele LTestimonial #33 Best Ever: Make no changes. You're the best. by Natalie CTestimonial #34 If your make-up has been clogging your face pores for months and you are sick of waking up with new friends growing on your chin and forehead, please, please, do yourself a favor and let Amanda fix your face! by Nicole JTestimonial #35 Loved It: Don't change a thing Amanda. Seriously. You rock! by Pam PTestimonial #36 Best Ever: Serve Beer. Thanks, it was great! by Paul ETestimonial #37 Loved It: You do a great job and make an awkward experience a lot easier. You are friendly and pleasant no complaints! by Phyllis MTestimonial #38 Best Ever: WOULD CHANGE NOTHING BABY GIRL! YOU ARE ALREADY PERFECT!!!! NO ONE ELSE WILL EVER WAX MY PLACE, YOU ARE THE BEST! by Promise R.Testimonial #39 ) Best Ever: Really enjoyed meeting you and the whole over all experience today. by Shelley HTestimonial #40 The whole experience was great, quick, painless, and effortless. LOVED the location, music and feel. I felt VERY comfortable, thank you and I will be coming back by Sonia G.Testimonial #41 Best Ever: More numbing cream please by Tina MTestimonial #42 Best Ever: Hmmm, maybe serve wine? by Tina MTestimonial #43 I enjoyed the experience thoroughly. I felt comfortable and in the hands of someone who knew what she was doing. It is not normal for a guy to feel at ease getting a facial, but Amanda surely achieves that. Additionally, great music, vibe and more by Tom STestimonial #44 On top of getting the best service ever, Amanda is such a wonderful, beautiful person. I am a customer forever! You are perfect! by Trish BTestimonial #45 Best Ever: Alyse and I loved you. You are amazing . And funny. Your so awesome!!!!!! by Valerie S

Top of pagePrevious messageNext messageBottom of pageLink to this message   By lizardwoman on Monday, June 18, 2012 - 01:14 pm:

Hello everyone!

I haven't been on here for a while but as a mostly recovered eczema sufferer I'm thinking of starting an information and advice service for helping people with eczema. I've created a survey to find out what people need to help them recover and deal with their eczema day-to-day. I'd be really grateful for any input, the survey can be found here (copy and paste into your browser):
surveymonkey.com/s/Q5SL2XX

Thank you!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Auth on Tuesday, June 05, 2012 - 09:52 am:

Hmm it appears like your site ate my first coenmmt (it was extremely long) so I guess I'll just sum it up what I wrote and say, I'm thoroughly enjoying your blog. I too am an aspiring blog writer but I'm still new to the whole thing. Do you have any recommendations for newbie blog writers? I'd certainly appreciate it.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By iyariitha on Sunday, April 22, 2012 - 06:46 am:

Possible Temporary Relief isn t true. It is 100% a cure. My niece was born with eczema and it got so bad the dcootr said she might be like that all her life. Then someone gave us elidel, so we used it and almost instantly the eczema was gone. 5 years later she has had no symptoms of eczema and we stopped using the cream within weeks of initial use. Powerful stuff, so don't abuse it.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Louise on Wednesday, June 18, 2008 - 09:04 am:

use steroid OINTMENT like Eumovate or hydrocortisone-NOT CREAM. Use on nipple area and cover with a pad like the ones nursing mothers use. This will stop the ointment making a mess of your bra or open sores sticking to the fabric. Try to go without a bra at night and use a cotton bra during the day. If you dont like the idea of steroids, you could try lansinoh or one of the products designed for cracked nipples in nursing moms. Hope this helps.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Peter on Wednesday, June 18, 2008 - 07:15 am:

Are you sure that it is impossible to get air to your breasts some time during the day –perhaps in the evening? Explain to those around you the reason and surely they will be sympathetic. If you can free your self from eczema, then it must be worth the initial possible embarrassment. Steroid creams are normally recommended to be used only in the short term and I sure their prolonged use cannot be good for your body. Also they don’t cure eczema, they only treat the symptoms. Could you stop wearing a bra and perhaps wear a camisole top instead? Good Luck.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By flakyface on Tuesday, June 17, 2008 - 08:50 pm:

i have really bad ezcema on my breasts and nipples and wondered if anyone knows how to treat this, as is impossible to get air to it. is it ok to use steroid creams on them?

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Piebondy on Tuesday, September 18, 2007 - 11:00 am:

It is quite upsetting now having reached the age of 38, that the doctors never suggested coconut oil at any time, when this is the only thing that has worked for me. Now whenever I get a flare-up I just rub coconut oil in morning and night for a couple of days, and it just vanishes. What I like is that you can use it as often as you like without worrying about side effects, as it’s pure and natural. There are loads of places selling it on the internet. I get mine from ‘Coconutty’ as it is virgin. Also I have recommended it to other eczema sufferers and it has worked for everyone so far. I’ve heard that Indian Neem oil is also effective, but doesn’t smell as nice as coconut!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Terry on Tuesday, July 11, 2006 - 12:56 pm:

Hi K

I understand what you are saying but my view has always been that I live with eczema every day of my life whereas a Doctor has just read about it in a medical journal or attended a seminar on skin disorders!

It's also difficult to follow Doctors instructions because a lot of the treatments they prescribe have nasty side effects. I have recently been presecribed a protopic cream. The long term effects of protopic are unknown but it could increase my chance of developing skin cancer.

Having watched my father fight lung cancer and lose, it's difficult for me to use the protopic because I can't help thinking about the risk of developing skin cancer however small it is. If the choice is to live with eczema or go through the same thing my dad had to go through, then I choose eczema. I've managed to survive the last 26yrs with it!

Also, I have started to improve my diet and have started taking Evening Primrose Oil capsules and my skin does seem to be improving. This seems a much better way of dealing with it than dodgy creams with dodgy or even unknown side effects.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By k on Thursday, July 06, 2006 - 09:46 pm:

Many people don't follow their doctors instructions properly and therefore blame the doctor when their eczema doesn't get any better. Eczema is all about management listen to your dermatologist and don't jump to saying no to steroids.There are too many people who are self proclaimed doctors who think they know better than a trained professional.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By yabasao on Saturday, March 11, 2006 - 09:20 am:

Zoe, first of all I should say, I'm not a doctor.
My background is that I have had eczema on pretty much every inch of my body at one time or another, but not usually everywhere at once, over the last five years (I'm currently 28).
Initially I had many flare-ups that involved my face. After seeing a doctor in Canada I started using hydrocortisone on my face and stronger steroids elsewhere. But I then had the side effects and was recommended to a dermatologist who put me on Protopic, a prescription that has been upheld by my dermatologist in the UK on NHS. My impression is that it is a good choice for face and neck. I know it gave me my life back. email me if you want more info.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Zoe on Monday, February 21, 2005 - 11:54 am:

I suffer with eczema and the worst of it is on my face, i have seen a few dermatologists one on the NHS and the other i paid private to see. I have been given diffrent information from the dermatologists and doctors i have seen and i am very confussed about steroid creams. I have been using hydrocortisone 1% ointment on my face,lips and eyes for over five years on and off,i was prescribed this by my own GP and i was never told by him of the long term effects these cause, i have only in the last two years found out.I have since seen a few doctors havall said diffrent things,the dermatologist prescribed me a stronger steroid (eumovate) to use on my face and told me that it was fine to use it long term, i since have noticed broken veins on the areas i have used this and have had to stop using it, i also spoke to another doctor who said that i should never have used it on my face. Is it safe to use Hydrocortisone 1% on my face my doctor says its ok but others say not, im so confussed, its the only thing that seems to work for me. I dont know whats worse having to live with the eczema or keep using the steroid and have thin skin and red veins! im at my witts end im 22 and these should be the best years of my life. Ps sorry its so long it's good to get it off my chest x

Top of pagePrevious messageNext messageBottom of pageLink to this message   By UntypicalAngel on Sunday, October 10, 2004 - 03:41 am:

ruth - nothin better for stress then kickin the crap outta a bag ;) been great to me... ive lost most of the weight i gained while on prednisone, found awesome stress relief n as an effect of controlin my stress... i became in control of my eczema... for the most part... still get it a lil... mainly when major stressful things occur (parents car accident!) i go 3 times a week... mon, wed, & fri... has proved to be a great way to get fit... and to feel better bout self... not to mention the amazing thought of being able to protect self lol i highly recommend it to all

Top of pagePrevious messageNext messageBottom of pageLink to this message   By ruth on Wednesday, October 06, 2004 - 01:55 pm:

Untypical angel - you are right about a lot of the doctors who 'treat' eczema. A lot of them don't have a real grip on how bad it can affect people's entire lives. Even some of the specialists who i have had to deal with simply don't have a grip on how devastating, painful and disabling it can be for everyone involved - not just the person who has the condition. I think its that same old story that you can only appreciate the whole picture when you live it 24/7. I'm glad kick boxing works for you - it sounds like a good therapy all on its own - i might have to give it some thought too!. all the best, ruth

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Untypicalangel on Friday, October 01, 2004 - 03:11 am:

doctors.... pssh who needs em... all they do is perscribe useless creams... countless pills... and numerouse ointments that just dont work... scuse me but i have better things 2 do wit my money then by creams ointments n pills... not to mention the dr bills cuz they want u back every 2 weeks... wut the hell good is it doing me?!?! NONE!!!!! ugh... waste of time... waste of money... waste of... well... energy for that matter... best thing ive found... is takin my mind off of it all by doin something for me... ie i took up kick boxing... i found that relievin stress by knockin around some bags is n awesome way to take ur focus off ur skin... n when u do that... u tend to forget about scratchin... >shrugs< no doc can perscribe that :-p

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Chris on Tuesday, October 28, 2003 - 08:40 pm:

Don't tell me about the best doctor being yourself. I wanted to hit my doctor before(but never would) as she told me a 500g tub of emulsifying ointment should last 2 or 3 months. 3 months, are u joking. I use it in about 3 weeks which at the moment I think is quite good. I am now trying epaderm, which was recommended by my dermatologist. I still can't believe my doctor wouldn't give me something which costs about 2p to make and has no side effects. Useless doctors were also the reason why my eczema got bad in the first place. Makes me think I should be a GP sometimes. :)

Top of pagePrevious messageNext messageBottom of pageLink to this message   By helpful remidy on Wednesday, July 23, 2003 - 06:24 pm:

Im not a doctor but, with as many as I have been to with my severe atopic dermititis (as they call it) or really really bad eczema in other words, i might as well be one! im 16 yrs old and i have found that the best doctor for your skin... is yourself! Youo know your skin better than anyone else does. You know how it reacts to different things and you know how it feels. So, when it comes to doctors, most of them, if not all are useless. Sorry doc... but all you do is proscribe more pills that dont help me... more creams that dont work... and make me and my parents spend more unneccesary money. the best thing ive found that you can do for your skin (and its worked wonders for me) is get a product called the honey guy water blocker skin cream. (You can order it from the website www.thehoneyguy.com) It works so well! I lived in the stuff and three days later i looked great! by 2 weeks... all my spots were completely gone. I hope you all can stay positive and eventually find relief.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By LH on Saturday, May 17, 2003 - 03:12 pm:

Hi,
I too have had a problem with my current GP in that I have had chronic atopic eczema all over (basically hands and feet only places ok), and he would not refer me to a dermatologist on the NHS, even though I was going back for antibiotics every month!!!

Funny thing was, in a last ditch attempt, I joined BUPA with eczema as a pre-existing condition (and therefore covered), and as soon as I mentioned this, my GP's little eyes lit up and basically I got an appt with a dermatologist 4 days later. Is it the state of the health service in this country, or is it just me?

I still pay my NI AND GKW per month for private cover, but it's the only thing left that gives me a little faith that I will NOT die of erycephilas (excuse spelling), as I have had this, and Dr. Haphazard refered me to see a DENTIST as he thought I had a jaw problem, when in fact every single lymph node / gland was swollen in my head, and was v.painful. Dentist had interest in dermatology so he saw this straight off and wrote a scathing letter to my GP. 2 long courses of antibiotics is what it took to get rid.


Feeling better now that a) had a rant!!! and b) moved to a different county (notts to derby), and hopefully I can find a more sympathetic GP who knows infected eczema from a bad case of toothache!!!

Glad to know that I'm not the only one who landed with an unsympathetic GP, although I wouldn't wish it on anyone.

Thanx 4 listening,
LH

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Fed up on Monday, April 07, 2003 - 05:10 pm:

Going back to the orginal message, I have had a nightmare with almost all the doctors I have seen. I paid to see a private dermatologist a few years ago and he was no help at all - told me I had psoriasis and eczema and gave me cream which made it a lot worse (I do not have psoriasis and never had - I have fairly severe eczema all over). He then put me back on the NHS and I had to wait 6 months for patch tests. When I saw him again, he said - ugh - your skin looks awful - what has caused that!!!! As if I would be seeing him if I knew! The usual thing happened after that - "put steroid cream on and see me in 6 months". My skin got worse and worse and I got more desparate.
Since then, I have had had another dermatologist who is even worse - he doesn't examine my skin - just asks me what creams I have been using. He doesn't read my notes and doesn't listen to me when I try and tell him that the treatment is not working and that I can't cope any more.

I have also seen several GPs - one I saw last week told me it was fine to use very potent steroid cream on my face. All other Drs have said this is a very bad idea. She also advised me that it was not infected and I am fairly sure it is.
Help - how can I get some good advice - I'll pay any amount of money. Can I just get a private Dr without being referred? Can I ask for a different NHS specialist?

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Kez on Friday, January 10, 2003 - 04:25 pm:

Karen, Have you tried wetwrapping your sons hands at night and anyother time when hes not at school as many times as possible?? Believe me they are not the complete answer but his skin will feel so much better and smoother. Also apply very thick layer of moisture cream - non scented etc.at any other times before school after school etc. hope this helps. Kez

Top of pagePrevious messageNext messageBottom of pageLink to this message   By KAREN on Thursday, January 09, 2003 - 08:54 pm:

PLEASE HELP
MY LITTLE 9 YEAR OLD HAS BAD ECZEMA ON HIS HANDS AND THEY LOOK ABOUT 60 YEARS OLD SOMETIMES AND THEY ALWAYS HAVE CUTS FROM BEING SOOOOO DRY.
THE DOCTOR JUST KEEPS GIVING HIM THE SAME LOTION.
THANKS,
KARENFURINO

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Juliet on Tuesday, December 10, 2002 - 06:09 pm:

there is a more active discussion group worth a look at:

support groups
adults
our stories 2

Juliet

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Juliet on Tuesday, December 10, 2002 - 06:03 pm:

Dear ALexaelectra,
I used to have the same problem as you. I found breastfeeding pads placed in your bra help (from "Boots" if you are in th UK). They dont stick or rub as much as your bra. Presume you only wear cotton too, its the best thing really. I had eczema elsewhere too especially on my face and was eventually (after many dermatologists and wrong diagnosis) diagnosed with eczema herpeticum which is caused by the herpes simplex virus (causes coldsores). I was then put on aciclovir and given Eumovate steroid cream for my eczema areas, including breasts. Things improved greatly but then went downhill a bit again, however my breast are doing well. Am currently using Elocon there which is stronger but used less often. My dermatologist has now put me on oral steroids and stopped me on the creams, will see how that goes...
What i am trying to say is sometimes oral treatments are needed :antibitoics, steroids, etc.. as there may be some infection or a deeper cause than just eczema. Do you have it anywhere else on your body? Also, is there a certain "smell"? If so, this is a sign of infection caused by staphyluscoccus (not correct spelling i am sure!) which would demand a course of antibiotics.
Also, maybe try another dermatologist? I have had very different diagnosis from different dermatologists. Hope this helps a bit.
Juliet

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Alexaelecttra on Wednesday, December 04, 2002 - 03:36 am:

i have had eczema since i was a baby.....it has been in and out of my young years went away at teh age of 15-16 and has been back in my life around the age of 17. it is absolutely horrible. it is all over my body and now the worst part that i have it is on my nipples...nothing seems to work and having to wear a bra ALWAYS rubs my nipples so they are never able to heal....my whole body itches constantly.....i would serioulsy pay all the money i have to get rid of this skin disease.....has anyone else ever experienced it so bad on their nipples that the skin is always off them, euzing puss and being an open wound? is their any doctor or specialist that anyone would reccomend? i will fly anywhere in the country or WORLD to see them....my dermatologist has given me creams but my skin out grows every cream and they begin to fail on me.......SOMEONE PLEASE HELP ME!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By LULU on Thursday, October 31, 2002 - 04:22 am:

SCOTT-GET A DE-HUMIDIFIER.

ALSO GO TO A DERMATOLOGIST AND ASK FOR PROTOPIC SAMPLES. IT HAS HELPED ME. I SUFFER FROM ATOPIC DERMATITIS. ECZEMA. CHRONIC ALL OVER BODY. AND THIS CREAM HAS TAKEN AWAY ALL MY RASHES.

GIVE IT A TRY.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Scott on Thursday, October 31, 2002 - 01:11 am:

Help!!? My wife suffers terribly from eczema and nothing seems to work. As bad as it is for her, it is driving me crazy not being able to do anything for her. Can anyone recommend a doctor or doctors who seem to know how to treat this? My wife has been tested for allergies and currently is undergoing weekly shots but so far nothing is helping.

It is so confusing to read some of the literature on the condition because there are so many contradictory pieces of information out there. My wife blames her misery on living in a high humidity environment, one in which she is not used to. I am not certain about that though. Does anyone have any thoughts on this? Any help is appreciated. Thanks.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By BRIANNAH1 on Tuesday, July 09, 2002 - 04:56 am:

HELLO I'M NEW HERE.. BEEN TO DOCTORS EVERY WEEK WITH MY 1 1/2 YEAR OLD... NOW WERE AT CHILDERNS HOSPITAL IN BOSTON AND A FOODA ALLERY AND ECZEMA CLINC MY SON SO MUCH BETTER.. NO MORE STERIODS...AYAYAYAAA

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Christine on Thursday, October 04, 2001 - 01:00 am:

All I can say is don't be afraid to change doctors and try someone new. I had one doctor who kept telling me my eczema was stress-related and that I should simply try yoga and a mild steroid cream. Well, six months later, things were only getting worse. I found another doctor who looked at me and said "your skin is very sick, but we're going to do something about it." It was so great to find someone that finally recognized the severity of my condition and wanted to be proactive about finding a solution. Although I am by no means "cured", it's great to have someone that listens to me and is actively working with me. So don't stop until you find the right doc!!

Christine

Top of pagePrevious messageNext messageBottom of pageLink to this message   By davinder on Thursday, October 04, 2001 - 12:10 am:

Betty - how the hell did you cope?!
Naminder also had chicken pox - misdiagnosed - and only agreed as chicken pox ..err... about 2 minutes after giving birth! So out come the drips and you know the rest..

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Betty on Friday, September 07, 2001 - 08:41 pm:

Hey! Good job we have this board to vent really! I gave my little girl some tomato for the first time in months yesterday and her skin had reacted within an hour. Stay off that then!! Betty

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Madam Flaky on Wednesday, September 05, 2001 - 01:51 pm:

Thanks Betty, I hear you loud and clear!! It took a week for my eczema herpeticum to be diagnosed, (I have mentioned this somewhere else in this site), and I was basically shoved from pillar to post until eventually I was admitted to hospital with it raging all over me. Also, everyone insists that I go to doctors or "specialists" who I know will just try and put me on some steroid cream, and I want to fix the PROBLEM, not the SYMPTOM.

In this latest flare up which has been severe for the past 3 - 4 months, a doctor I work with told me in no uncertain terms, that I had slapcheek (parvo virus). He said I had to be tested for it, so I asked him if I could please be tested for allergies too. He was so reluctant and arrogant I almost cried with desperation, and eventually he conceded after having humiliated me. Doctors tend to have this 'I'm the one with the degree, so how the hell would you know' thing going. Anyway, parvo virus was negative (as if I didn't know) and my IgE was 2408, (excedingly high in a range of 1 - 101, don't you think??!!!) That doctor became extremely humbled when I told him the news, and aside from some medical snobbery when I told him I was seeing an Integrative doctor, he has been quite supportive ever since.

Sorry that was so long, but I needed to vent! (I seem to vent on a regular basis these days!)

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Betty on Wednesday, September 05, 2001 - 11:14 am:

The doctor and the chicken pox saga! I have a long winded story to tell involving a new GP (young arrogant woman! -old one been going to for years retired!). My daughter had chicken pox on top of her eczema when she was 8 months !! (Scratching nightmare!)

Anyway to cut a long story short - we thought it was chicken pox, but went to doc for confirmation. Saw same doc twice in 2 days - both times said "Definitely not chicken pox" and made us feel 2 inches high and thick!

Second time she prescribed 10% hydrocortisone and antibiotics, treating eczema infection. So that night we rubbed in the cream - it the morning my little girl was COVERED in pox! We had knocked all the tops off and spread it.

Went to see different doctor. We walked in and he said "Ah yes chicken pox!!!"

Need less to say - I kicked up a fuss and now will NEVER see that stuck up young doctor again.

We were badly treated when we were new parents with genuine concern and especially as we were already being treated for eczema and we had had several other health concerns in the first few months (I had a major haemorrage 8 days after the birth, my newborn Baby had been in special care for monitoring of heart defect, dad had slipped a disk at the same time. Enough of that.

Thanks for listening - good to get it off ones chest! Betty

Top of pagePrevious messageNext messageBottom of pageLink to this message   By eczemavoice on Tuesday, September 04, 2001 - 11:12 pm:

too right!
Our first doctor told us it was not eczema.
Eventually we were properly diagnosed.
All too often they seem to give aqueous cream and thats it.
They have very little training unfortunately.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Madam Flaky on Tuesday, September 04, 2001 - 03:37 pm:

Hi people.
I have been noticing how many people have stories of doctors who have dismissed their conditions or, in their infinite wisdom, gone and prescribed something completely unrelated to their conditions. I have horror stories involving doctors of my own, and maybe if we start a topic here, we may be surprised at the level of medical incompetence out there. Yell, scream and shake your itchy fists!!

Any starters?

Top of pagePrevious messageNext messageBottom of pageLink to this message   By William on Wednesday, May 21, 2003 - 08:14 pm:

I can only sympathise rrr. Another thing that the medical profession does not tell you about eczema is that it is not curable. It may go away or it may flare up but no one seems to know why. At least by using a non-steroid product you are hopefully not causing damage to your skin through long-term use. Please keep us posted as to how you get on with your natural supplements.

I know I am getting a little away from the title of this thread, but I would be very interested if anyone knows how eczema travels to different parts of the body as in rrr’s case. Is it by touch, in the bloodstream, or is it just that coincidentally more than one part of the body is suffering the same dry skin problem?

Also, from my original point, does anyone know how to diagnose dry skin? Is there a simple pinch test or wrinkle test to show for sure that dry skin is in fact the source of a particular skin problem?

Many thanks in advance.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By rrr on Tuesday, May 20, 2003 - 10:18 pm:

I used Elidel on my legs and it helped, but it took over a month to clear up, and it has come back a little (not as bad). But now I have eczema all over my back and shoulders. So my legs cleared up, but now my back and shoulders are affected, very badly I may add. My dermatologist recommend that I take an antihistamine to suppress the "allergic" reaction, but when I asked if I should/could go get a patch test to test what I was allergic to, she said don't bother. Why would she say that? I am pretty frustrated with the doctor and dermatologist. I started taking Flaxseed oil, Vitamin E, C0 Q-10 and liver enhancer products hoping that I can prevent flare ups naturally. Anyone try any of these natural supplemetns?

Top of pagePrevious messageNext messageBottom of pageLink to this message   By William on Tuesday, May 20, 2003 - 02:29 pm:

Many thanks Annie. I will try Elidel, I have found that my local chemist in Cheshire has it. Confusingly they say it comes in different strengths, which seems a little odd for a product that has no side effects (according to their website www.elidel.com). However, I will discuss it with my doctor and pass on any info.

Thanks for the advice about allergy tests, Tropical. I have wondered the same thing myself, but after listening to a lecture at the National Eczema Society’s recent meeting in Manchester I am not so sure. The speaker there said that allergy testing for skin problems was largely a waste of time and money, as an allergic reaction to anything would show on the skin within one and a half hours of consumption or contact. It should therefore be fairly easy to narrow down its cause.

I am very sympathetic June. I went for months with sores getting bigger and itchier, until I was eventually referred urgently to a dermatology specialist. The diagnosis was then instant. In my case the eczema starts as a small, very pink spot (on white skin). If left untreated these just grow and grow. When they get big and are scratched or rubbed they weep a watery liquid. With the help of Betnovate (a medium strength steroid) mine had almost faded away within two weeks. However, as you will read in other threads, steroid cream is bad news if used often and for long periods. Also, I am told that Betnovate should not be used on the face. The lower strength Eumovate should be used for this, but again only for short periods. There is also a high strength version called Dermovate which I assume must be for very bad cases. I suspect that Dynamite is the only stronger option!

I am currently trying drinking a lot of water to see if this has any effect. Logically it should do, though I am going for a pee every 15 minutes.

Top of pagePrevious messageNext messageBottom of pageLink to this message   By June on Monday, May 19, 2003 - 03:06 pm:

hi folks
Im not sure that I even have eczema, but I have been suffering for the last 2 months quite out of the blue, with irritation on my hands, like tiny blisters which really itch when whole, and are sore when broken. I have been through quite a stressful 8 months and think that the build up could have possibly caused this problem. I have tried HC45 and steroid ointment, take numerous antihistimines, but the itch continues, help!!!!!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By tropical on Monday, May 19, 2003 - 01:14 am:

I have started using ELIDEL so I was pleased to see that it has helped your child. I am 59 years and have eczema for 13 years and used steroids on and off during these years and definitely my skin has thinned through the use of these ointments and prednisone tablets. They made life more bearable at the time but now I try to cut out the stress in my life, I do yoga and meditate and occupy myself with things I enjoy. I hope the ELIDEL works but where I live it is very expensive. William have you done tests to see if maybe you are allergic to something/

Top of pagePrevious messageNext messageBottom of pageLink to this message   By Annie on Sunday, May 18, 2003 - 08:52 pm:

William,
Sorry to hear the medical world have not been very infomative,but Im sorry to say my own experience was very similar.I am the mother of a 6 month old who has eczema and I have spent the last 4 months searching for answers...!
The first thing I learnt was that emollients are your first line of defence..literally!Eczema skin lacks the means to defend itself and emolliant acts as that missing defence,probably not very well explained but Im sure you get the idea!Try something basic like Aqueous to start.Pharmacies do a huge pot for very little money.so you have nothing to lose!
secondly,steroid cream..Yuk! I was told to keep putting it on my son for months All or my instincts told me it was the wrong thing to do and all of my research confirmed it.I eventually found a product new to the market called ELIDEL and the difference is amazing.Its the biggest breakthrough in eczema care in 50 yrs and I cant believe the news is taking so long to get out!
So the short answer is no,you dont have to live with eczema..you learn to control it!! good luck!

Top of pagePrevious messageNext messageBottom of pageLink to this message   By William on Saturday, May 17, 2003 - 09:53 pm:

I suppose that at the age of 59 I must be grateful that I have only had eczema for about six months now. As a newcomer to the community there are two things about the treatment that I find very puzzling:
1) Neither my doctor nor the hospital dermatology consultant I have seen has ever mentioned the word “emollient”. The first time I heard of emollients as an eczema treatment, was at the recent National Eczema Society “Roadshow” in Manchester. Perhaps emollients have never been mentioned because I do not have obviously dry skin and possibly therefore I do not need them. Can an eczema sufferer also have normal “wet” skin? Is there a simple test to diagnose dry skin, or should it be obvious?
2) Information I have read on the subject states the dangers of the over use of steroid cream, while at the same time stating that steroid cream is the only way of controlling the problem. I have asked my doctor about this and he says that I will get skin thinning problems if steroid cream is used for a long period, “maybe six months or more”. Surely there are people who have had eczema for much longer than six months. Do they have to make a choice between living with eczema, and living with the side effects of the treatment?


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